Title: Ichthyosis Support Group Website
icklebelter - January 4, 2006 03:46 AM (GMT)
For those of you who are interested in finding out more about the condition Ichthyosis and the charity the Ichthyosis Support Group I thought it'd be a good idea to put up a link for the website. Clive has done a great job in updating the site since the tv documantary was shown on ITV1 in October (thumbs up) Why I didn't think of putting this thread up sooner I don't know lol but so much stuff is whizzing through my head at the moment I don't know me **se from me elbow LOL
http://www.ichthyosis.org.uk/Mel
Johnny - January 4, 2006 12:57 PM (GMT)
Cheers for that mel
They have been busy havn't they! since the last time i looked anyways!
Its really goo to view this website to find out more about what the fundraiser is all about! :D :)
Julia P - January 4, 2006 05:03 PM (GMT)
i would love to know moe about it, but how do you say the word (sorry im dyslexic and i find things like that hard)
icklebelter - January 4, 2006 05:12 PM (GMT)
| QUOTE (julia P @ Jan 4 2006, 06:03 PM) |
| i would love to know moe about it, but how do you say the word (sorry im dyslexic and i find things like that hard) |
No probs Julia!! You pronunce the condition as ICK-THEE-YOSIS hope that helps :)
Mel
Julia P - January 4, 2006 06:56 PM (GMT)
| QUOTE (icklebelter @ Jan 4 2006, 05:12 PM) |
| QUOTE (julia P @ Jan 4 2006, 06:03 PM) | | i would love to know moe about it, but how do you say the word (sorry im dyslexic and i find things like that hard) |
No probs Julia!! You pronunce the condition as ICK-THEE-YOSIS hope that helps :)
Mel
|
lol. ok thankx.
its helps alot. :P
dawneh - January 4, 2006 08:30 PM (GMT)
| QUOTE (julia P @ Jan 4 2006, 05:03 PM) |
| i would love to know moe about it, but how do you say the word (sorry im dyslexic and i find things like that hard) |
It took me ages before I could get my tongue around that little teaser of a word !!
Thanks for reminding me about the website Mel... its nice to see how things are getting on there
saucywoodnymph - January 4, 2006 10:57 PM (GMT)
I'll be sure to check it out thanks Mel
love
J X :wub: