Thought some of you may be interested in reading a couple of the write up's in the latest issue of the ISG newsletter. Our fundraising event gets a few mentions throughout the newsletter, just a reminder as to why we are having this event. And I thought I'd post Lucy's story about when she and her sister were in the TV documentary about Harlequin Ichthyosis. They really are remarkable girls, as too are Dana and Lara the two other girls featured in the TV documentary. Hope you can read them ok, apologies for the quality as usual LOL






Well done Emma!!!! What a fantastic little girl!!!! :)

Mel

Thanks for those Mel... It's nice to know the great time we're gonna have is also gonna help something so worthwhile

Here Here Dawn so glad we are able to help this great cause out :)

Thanks for that Mel

i remember watching the tv prog with the two sisters.
what a worthwhile cause this fundraiser is (thumbs up)

Linda

Thanks everyone, and thanks for reading much appreciated :D

And thanks Linda (thumbs up) See you all soon

Mel